Testimonials

Steve An Jessica Saia

I just would like to give a shout out to Dr. Amanda Pong (pediatric neurologist)! This woman/ Dr. Has done more for Payton then any doctor has done for her in almost 5 years. We found her through many prayers asking God to please guide us to help. Payton was having sleep trouble and we were looking up places that specialize in sleep and came across (Mid-Atlantic Epilepsy & sleep center). Little did we know our answer to our prayers was in this building. If you have a child with severe and complex medical conditions then you have learned the hard way that a lot of these doctors get frustrated when they can’t find answers and they give up on your child. This has happened time and time again with Payton. I can’t tell you how many times we have heard “we’re at the end of our rope, I’m sorry”. However when we met Dr. Pong for the first time she was challenged with Payton. It didn’t scare her, it gave her such a desire to give her a better life, that she sat with us for 3 hours, reviewing the past 4 years of her life! She is always straight forward, she is compassionate about her work, she loves a challenge, she is very patient and caring and overall the biggest blessing we have ever been given. After trying a few things and running some more tests she felt Payton would be a great candidate for a trial drug (Soticlestat). At this time Payton averaged anywhere from 5-30 seizures a day. Most of them being drop seizures which are pretty dangerous in every aspect. She slept most the days, she barely spoke and when she did you couldn’t understand her, she had no memory and to put it in a nutshell she just slept or was seizing.  Payton started the trial and she has been seizure FREE for 2 months!!! This never would have happened without a dedicated Dr who was just as concerned as her parents for her to have quality of life!!! I will forever be grateful to her and her team and I would highly, highly recommend seeing her as a first choice or as a last effort.

Steve An Jessica Saia

I just would like to give a shout out to Dr. Amanda Pong (pediatric neurologist)! This woman/ Dr. Has done more for Payton then any doctor has done for her in almost 5 years. We found her through many prayers asking God to please guide us to help. Payton was having sleep trouble and we were looking up places that specialize in sleep and came across (Mid-Atlantic Epilepsy & sleep center). Little did we know our answer to our prayers was in this building. If you have a child with severe and complex medical conditions then you have learned the hard way that a lot of these doctors get frustrated when they can’t find answers and they give up on your child. This has happened time and time again with Payton. I can’t tell you how many times we have heard “we’re at the end of our rope, I’m sorry”. However when we met Dr. Pong for the first time she was challenged with Payton. It didn’t scare her, it gave her such a desire to give her a better life, that she sat with us for 3 hours, reviewing the past 4 years of her life! She is always straight forward, she is compassionate about her work, she loves a challenge, she is very patient and caring and overall the biggest blessing we have ever been given. After trying a few things and running some more tests she felt Payton would be a great candidate for a trial drug (Soticlestat). At this time Payton averaged anywhere from 5-30 seizures a day. Most of them being drop seizures which are pretty dangerous in every aspect. She slept most the days, she barely spoke and when she did you couldn’t understand her, she had no memory and to put it in a nutshell she just slept or was seizing.  Payton started the trial and she has been seizure FREE for 2 months!!! This never would have happened without a dedicated Dr who was just as concerned as her parents for her to have quality of life!!! I will forever be grateful to her and her team and I would highly, highly recommend seeing her as a first choice or as a last effort.

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